Privacy of Medical Records: Difference between revisions
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[http://www.healthprivacy.org/usr_doc/Privacystories.pdf Health Privacy Stories] | [http://www.healthprivacy.org/usr_doc/Privacystories.pdf Health Privacy Stories] | ||
[http://forhealthfreedom.org/Publications/Privacy/Grandpa.html Does Government Need to Know if Grandpa Curses?] | |||
[http://news.zdnet.co.uk/emergingtech/0,1000000183,2083041,00.htm Hospital Hacked - records stolen] | |||
[http://www.os.dhhs.gov/news/press/2000pres/00fsprivacy.html PROTECTING THE PRIVACY OF PATIENTS' HEALTH INFORMATION] | |||
[http://www.hhs.gov/news/press/2000pres/20001220.html HHS ANNOUNCES FINAL REGULATION ESTABLISHING FIRST-EVER NATIONAL STANDARDS TO PROTECT PATIENTS' PERSONAL MEDICAL RECORDS] | |||
[http://thomas.loc.gov/cgi-bin/bdquery/z?d106:h.r.00354: To amend title 17] | |||
[http://www.cdt.org/privacy/medical/ Medical Records Privacy] | |||
[http://www.whitehouse.gov/news/releases/2001/04/20010412-1.html President's Statement on Medical Privacy Information] | |||
[http://www.ama-assn.org/ama/pub/category/1905.html Guidelines for medical and health information sites on the Internet] | |||
[http://www.amia.org/mbrcenter/pubs/email_guidelines.asp Guidelines for the Clinical Use of Electronic Mail with Patients] | |||
[http://www.healthprivacy.org/newsletter-url2306/newsletter-url_list.htm?section=HPP%20Resources HPP Resources] | |||
[http://www.os.dhhs.gov/ocr/hipaa/ Office for Civil Rights - HIPAA] | |||
[http://www.netreach.net/~wmanning/otadig.htm Protecting Privacy In Computerized Medical Information (Office of Technology Assessment): Digest] | |||
[http://www.eagleforum.org/column/1999/mar99/99-03-24.html Who Controls Your Medical Records?] | |||
[http://leahy.senate.gov/press/199711/s1368.html The Medical Information Privacy and Security Act (MIPSA)] | |||
[http://forhealthfreedom.org/Publications/Privacy/HHSPrivacy.html Institute for Health Freedom] | |||
[http://www.zdnetasia.com/news/security/0,39044215,11052851,00.htm Medical Net privacy? It's unhealthy] | |||
[http://health.usnews.com/usnews/health/articles/010305/archive_004867.htm Guard Your Genetic Data from Those Prying Eyes] | |||
[http://forhealthfreedom.org/Publications/Privacy/CommunityRule.html Should Community Rights Override Individual Rights to Privacy?] | |||
[http://www.nomanagedcare.org/privacyelements.htm Key Elements Needed to Protect Medical Information Privacy] | |||
[http://epic.org/privacy/medical/ ''New'' Electronic Privacy Information Center] | |||
[http://whitepapers.zdnet.com/abstract.aspx?docid=353882 ''New'' Develop a HIPAA Privacy Policy] | |||
[http://www.computerworld.com/action/article.do?command=viewArticleBasic&articleId=9100258 ''New'' U.S. Privacy Act outdated, hasn't kept up with technology, experts say] | |||
[http://abcnews.go.com/Business/story?id=87899&page=1 Tech Firms Eye Medical Privacy Market] | |||
[http://pg-server.csc.ncsu.edu/mediawiki/index.php/CSC_379_SUM2008:Topics#Privacy_of_Medical_Information Topic Description] | |||
[http://ethics.csc.ncsu.edu/privacy/medical/study.php Original Page] | [http://ethics.csc.ncsu.edu/privacy/medical/study.php Original Page] | ||
Revision as of 21:46, 31 July 2008
Study Guide
Catalyst
Most people require a certain amount of privacy. Everyone holds a certain information about themselves to be personal and to be shared with only people whom they trust. This is the major cause of medical privacy issues. Because doctors’ offices and hospitals keep records on each of their clients, the issue becomes, who has a right to access these records? The widespread use of databases and other technology to maintain this data has caused the medical privacy issue to blow up at an even greater rate. Now, not only do insurance companies and billing agencies have access to your medical records, but hackers can now access them also.
Content of Medical Records
Medical Records may include your medical history, details about your lifestyle such as smoking or involvement in high-risk sports, and family medical history. In addition, your medical records contain laboratory test results, medications prescribed, and reports that indicate the results of operations and other medical procedures. Your records could also include the results of genetic testing used to predict your future health. And they might include information about your participation in research projects. Information you provide on applications for disability, life or accidental insurance with private insurers or government programs can also become part of your medical file. So, it is easy to see why people consider information about their health to be highly sensitive.
Accessibility
Medical records are shared by people both in and out of the health care industry. These include:
- Insurance companies
- Government agencies
- Medical Information Bureau(MIB)
- Employers
- Subpoenaed for court
Generally, access to your records is obtained when you agree to let others see them. In reality, some situations offer no choice but to agree to the sharing of your health information in exchange for care and to qualify for insurance. Other places where identity may or may not be disclosed are:
- Health care operations, or the evaluations of hospitals or individual physicians
- Public health agencies for health research
- Direct marketers when you participate in informal health screenings
Laws
Medical laws have been put into place for patient privacy protection. Under the Clinton Administration, the Health Insurance Portability and Accountability Act of 1996 was administered. Since then, there have been man amendments to the act, the most noteable being one of Clinton’s last actions as president. On Dec. 28, 2000, Clinton administered changes to the HIPAA of 1996. These changes gave patients unprecedented rights to track their medical files. It implemented new criminal and civil sactions for improper disclosure of medical records and it protects against unauthorized use of medical records for employment purposes. Although this last act gave patients unprecedented access and control of their medical records, some are not satisfied.
Genetic Mapping
More than 40 U.S. states have laws requiring hospitals to make available to insurance companies and researchers certain information about each visit they receive. With this information, hospital records can be obtained and all sorts of genetic testing can be done. This becomes extremely controversial because the laws are vague about what constitutes a research group.
Technology
Bibliography
How Private Is My Medical Information
Does Government Need to Know if Grandpa Curses?
Hospital Hacked - records stolen
PROTECTING THE PRIVACY OF PATIENTS' HEALTH INFORMATION
President's Statement on Medical Privacy Information
Guidelines for medical and health information sites on the Internet
Guidelines for the Clinical Use of Electronic Mail with Patients
Office for Civil Rights - HIPAA
Protecting Privacy In Computerized Medical Information (Office of Technology Assessment): Digest
Who Controls Your Medical Records?
The Medical Information Privacy and Security Act (MIPSA)
Medical Net privacy? It's unhealthy
Guard Your Genetic Data from Those Prying Eyes
Should Community Rights Override Individual Rights to Privacy?
Key Elements Needed to Protect Medical Information Privacy
New Electronic Privacy Information Center
New Develop a HIPAA Privacy Policy
New U.S. Privacy Act outdated, hasn't kept up with technology, experts say